Mission family tackle their son Nolin’s rare disease together

October 28, 2015
child fights disease

When you enter the Mission home of Darlene Schopman and Frank Jutten, the first thing that strikes you is how alive the house feels.

The smell of fresh coffee fills the air, original art hangs on the walls, and the sound of a child’s laughter echoes throughout the place. The house practically radiates love. You’d never guess the family is struggling with a health situation that would break most people.

Schopman and Jutten’s three-year-old son, Nolin, suffers from NANS deficiency, a devastating disease that has left him stricken with seizures and unable to walk, sit, talk or even hold up his head. He’s dependent upon his parents and other caregivers for everything.

For more information, visit: The Province

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